Wednesday, January 30, 2008

Hidden Treasures

According to Megan's got 47 this video was created to help those in the Catholic community deal with the diagnosis of Trisomy 21. Hidden Treasures was recently created by a group of families who want to share their stories of having a child with Trisomy 21. Enjoy their video and thier new blog.

It's official......

It's official, the weather stinks in MI. This morning the wind chill was -34 below. It wouldn't be that bad if I could sit on the couch and be in the comfort of my home but the city makes you get out and clear the snow from the walk ways so the mail man can get to your house. I don't disagree with them but it doesn't make it any more pleasurable. On top of that it was wet snow. It started off as rain, then freezing rain, and then about 3-4 inches of driffting snow. If that wasn't enough, it is trash day and our city does not have toters. You put your trash bags out at the curb, no more than 6. I guess it could be worse. I could be shoveling the snow and not have a snow blower. At this point it is the best purchase I have made in some time, even better than the new TV.

Sunday, January 27, 2008

New Look

As you probably have noticed I have decided to change the look of the blog in hopes this might encourage me to post more often. I have also added some things to my sidebar. If you have a child with special needs you will find many of the links helpful in your "fight" for your child receiving a Free Appropriate Education (FAPE). If you are a UK fan I hope you like the new UK widget. I couldn't help but add this one. I hope you like the new look and most importantly I hope the new links are helpful to parents who have kids with special needs.

Friday, January 25, 2008


Tom at Narrow Ridge linked this video about a mom and her daughter with Down syndrome reaching out to obstetricians to help them "put a face" on the condition.

Wednesday, January 23, 2008

Great Blog!

As many of you might know I spend time on the computer, after the kids are in bed,reading blogs trying to become more educated about Down syndrome and to connect with other parents who have kids with special needs, mostly down Syndrome. Mommy Life is one of my favorite blogs to read. She has so many interesting posts and a wealth of information and resources. Her latest blog is a great reminder of the importance of creating a child friendly environment in your home. This is not always possible for us because Abbey has not yet learned what is safe and what is not but their our some things we could do to make it better.

The post was also a reminder to me that I need to let the kids help me more. A good example is when it comes time for lunch. I often make their lunch, but today I decided to have Alex help me. He found the ham and cheese in the refrigerator and then went and got the bread from the bread box. He was so proud of himself for being a good helper. He even told me so, "Daddy, I'm a good helper". These are the things I love about being a homemaker!

I also have a list of other blogs I enjoy reading on my sidebar.

Tuesday, January 22, 2008

Special Education: Important Information for Parents...

has much information for parents and advocates helping children with special needs receive a Free Appropriate Education (FAPE). On their webpage it says,
The Individuals with Disabilities Education Act (IDEA) is the law that provides your child with the right to a free, appropriate public education. The purpose of the IDEA is "to ensure that all children with disabilities have available to them a free appropriate public education that emphasizes special education and related services designed to meet their unique needs and prepare them for further education, employment, and independent living..." 20 U.S.C. 1400(d) (Wrightslaw: Special Education Law, 2nd Edition, page 20).
Here is one of their articles, which I found helpful. I just ordered some of their training material. I hope it helps.

Wednesday, January 2, 2008

Happy New Year!

Abbey had a check-up with the Cardiologist today. Everything looked good and so we don't need to see him for another 12 months. The Cardiologist was very impressed with the quality of work done by Abbey Heart Surgeon (Dr. Austin). This is not the first time we have heard this.